What is rare?
#RAREis elevating the voices, faces and experiences of people living with rare disease.
#RAREis elevating the voices, faces and experiences of people living with rare disease.
#RAREisTM began as a social media campaign launched in 2017 to elevate the voices, faces and experiences of the rare disease community. It has since grown into a global, multifaceted program from Amgen that provides individuals and families around the world with access to resources that connect, inform and educate as they navigate their daily lives. The hashtag (#), #RAREis, remains as a way to follow the conversation on social media and remains in the name and logo to represent the broader program and community.
#RAREis brings together a chorus of individuals speaking out to the world about rare disease and what #RAREis means to them. Tell the rare disease story you are passionate about.
Share Your Story