Celebrating the #RAREis Global Advocate Grant Recipients

We are committed to advancing and improving the experience of living with a rare disease by making a meaningful difference for the people and communities we serve around the world. As part of that commitment, this year we launched and announced the #RAREis Global Advocate Grant, a program designed to support the rare disease community by providing financial assistance to U.S. and global patient advocacy groups working to advance, educate and address the needs of the community.

With more than 7,000 known rare diseases impacting more than 400 million people worldwide, there are thousands of organizations doing the important work of helping people living with a rare disease to access education, engage with peers and others impacted by rare disease and seek the best possible care. We are thrilled to announce that these 30 organizations are recipients of the 2022 #RAREis Global Advocate Grant. Each organization received a one-time $5,000 grant, for a total of $150,000 contributed to support programs and disease education initiatives to address the needs of the rare disease community.

The #RAREis Global Advocate Grant was created by Horizon Therapeutics to support rare disease advocacy groups in the U.S. and globally to address the needs of the rare disease community directly. Recipient organizations must be considered a non-profit organization focused on supporting the rare disease community outside of Horizon’s disease states. All funds will be used in the year provided and no healthcare providers will be receiving benefits from this grant. Visit www.rareiscommunity.com/Grant for more information and stay tuned for updates when applications re-open for the #RAREis Global Advocate Grant in 2023.