Commemorating the 2023 #RAREis Global Advocate Grant Recipients

We are committed to advancing and improving the experience of living with a rare disease by making a meaningful difference for the global rare disease community. As part of that commitment, we launched the #RAREis Global Advocate Grant in 2022 to provide critical financial assistance and build equity for the community by fostering growth for advocacy organizations around the world.

The 2023 #RAREis Global Advocate Grant was announced in February in honor of Rare Disease Day and to increase impact and support advocates who are catalysts for rare disease community needs, 50 groups were awarded a one-time $5,000 grant to establish new programs, develop educational resources and expand their current offerings to support their disease communities.

Horizon Therapeutics received nearly 190 applications, from 33 countries, representing more than 180 different rare diseases. The 50 organizations awarded the grant in 2023 represent 12 countries and focus on supporting 40 different rare diseases. Eight of the advocacy groups are recipients again this year, enabling continued programming from 2022. Meet this year’s recipients:

*indicates repeat recipients

The #RAREis Global Advocate Grant is part of Horizon’s #RAREis program, which is committed to improving the experience of living with a rare disease by providing support to many organizations that offer crucial programs and services for people living with rare diseases. Recipient organizations must be considered a non-profit organization focused on supporting the rare disease community outside of Horizon’s disease states. All funds will be used in the year provided and no healthcare providers will be receiving benefits from this grant. Visit www.rareiscommunity.com/Grant for more information and stay tuned for updates when applications re-open for the #RAREis Global Advocate Grant in 2024.

To learn about last year’s recipients, read this blog: Celebrating the #RAREis Global Advocate Grant Recipients.