All posts by #RAREisTeam

Empowering Change and Elevating Voices: 2024 #RAREis Global Advocate Grant

September 03, 2024 by #RAREisTeam

Notre Dame Students Rallying for Rare Diseases

August 13, 2024 by #RAREisTeam

#RAREis One: Elly’s Story

July 29, 2024 by #RAREisTeam

#RAREis One: Sally’s Story

June 21, 2024 by #RAREisTeam

3 Key Takeaways From the 2024 #RAREis White Paper

April 15, 2024 by #RAREisTeam

Life As a Mom, Caregiver, Advocate and X-Linked Carrier

August 23, 2023 by #RAREisTeam

Commemorating the 2023 #RAREis Global Advocate Grant Recipients

July 26, 2023 by #RAREisTeam

Top Five Mental Health Resources for the Rare Disease Community

June 12, 2023 by #RAREisTeam

With a #RAREis Scholarship, Meghan Aims for Ultimate Target: A Career in Paying It Forward

April 06, 2023 by #RAREisTeam

Celebrating Rare Disease Day 2023

March 02, 2023 by #RAREisTeam

Meet the 2022 Horizon Prize Finalists

September 19, 2022 by #RAREisTeam

Five Hobbies for People in the Rare Disease Community to Explore

August 26, 2022 by #RAREisTeam

Celebrating the #RAREis Global Advocate Grant Recipients

July 20, 2022 by #RAREisTeam

Doug the Pug and his Humans Sing a Story for Rare Disease

July 15, 2022 by #RAREisTeam

Expanding Our Reach With the #RAREis Global Advocate Grant

May 02, 2022 by #RAREisTeam

The #RAREis Scholarship Fund: Making Dreams Happen

April 15, 2022 by #RAREisTeam

A Diagnosis Doesn’t Define You

December 09, 2021 by #RAREisTeam

Knowing the Signs of Infantile Spasms

December 03, 2021 by #RAREisTeam

If I Can Help in Any Way, I Will

November 19, 2021 by #RAREisTeam

Ask for help, don’t quit and stay positive

November 11, 2021 by #RAREisTeam

Harnessing the Power of Storytelling

November 05, 2021 by #RAREisTeam

Five Young Adult (YA) Books That Inspire the Rare Disease Community

October 22, 2021 by #RAREisTeam

Building a Stronger Community Through Patient Advocacy

October 15, 2021 by #RAREisTeam

Five Online Resources to Support and Inspire the Rare Disease Community

October 08, 2021 by #RAREisTeam

The Power of Patient Advocacy is the Power to Make a Difference

September 24, 2021 by #RAREisTeam

The Horizon Prize Powered by MIT Solve

September 16, 2021 by #RAREisTeam

A Passion for Advocacy and Making A Difference

August 20, 2021 by #RAREisTeam

What I Would Tell My Younger Self about an X-linked Disorder

August 06, 2021 by #RAREisTeam

Saida Mahoney, a rare disease advocate, wearing a white dress and smiling for a photo on a red carpet with a gray curtain in the background for the California Miss Amazing pageant.

#RAREis Shining a Light on Everyday Struggles

July 30, 2021 by #RAREisTeam

Knowledge is Power: Female Carrier Edition

July 06, 2021 by #RAREisTeam

Five Podcasts That Inspire the Rare Disease Community

June 11, 2021 by #RAREisTeam

Apply Today for the 2021 #RAREis Scholarship

April 30, 2021 by #RAREisTeam

Tom from Sing Me A Story sits next to Francis and helps him write a story for a song

Five Songs That Inspire the Rare Disease Community

March 26, 2021 by #RAREisTeam

Talking to Your Significant Other About Being a Rare Disease Carrier

February 12, 2021 by #RAREisTeam

2021: The Year of the Rare Carrier

January 29, 2021 by #RAREisTeam

Celebrating RARE Champions of Hope Through Song

January 15, 2021 by #RAREisTeam

Goodbye 2020, Hello New Perspective

December 30, 2020 by #RAREisTeam

#RAREis Pursuing Your Passion

December 23, 2020 by #RAREisTeam

The Scariest Part of Being a Rare Young Adult

December 09, 2020 by #RAREisTeam

A Personal Commitment to the Rare Disease Community: Launching TED Awareness Week

December 04, 2020 by #RAREisTeam

More than a Major

October 30, 2020 by #RAREisTeam

#RAREis Scholarship Fund Now Accepting Applications

July 27, 2020 by #RAREisTeam

Helpful Resources for the Rare Disease Community Around COVID-19

March 20, 2020 by #RAREisTeam

What is a patient access manager?

December 05, 2019 by #RAREisTeam

Navigating a Forever Home with a Rare Disease: Daniel’s Story

November 27, 2019 by #RAREisTeam

Starting a Rare Disease Podcast

November 22, 2019 by #RAREisTeam

From Hong Kong to Forever Home

November 15, 2019 by #RAREisTeam

Celebrating Rare Families through the #RAREis Adoption Fund

November 01, 2019 by #RAREisTeam